Monday, March 16, 2009
Update on my clinical trial drug…Ouch!
Last Monday I had a “bit” of an annoying rash on my torso and neck. The doctor prescribed steroids and antibiotics which helped keep the rash at bay…until Saturday. By Saturday night my face looked like I had dipped it in a bucket of boiling water. Yesterday was awful; today not much better! Like having needles stuck in my head, face and back.
During today’s checkup at M.D. Anderson the doctor told me it is the worst skin reaction she has ever seen with this drug. Needless to say I stopped taking it. She prescribed high doses of steroids for the remainder of the week, believing this will ease my pain.
I guess this is what people do to try to heal. I have read such horror stories about chemo and I have maintained that if this is as bad as it gets I could handle it. Maybe not!
So, “C Day” is seven days away (“C” stands for Radical Cystectomy). I won’t say I am looking forward to the procedure or recovery but I am hopeful about life after recovery. Very hopeful…
During today’s checkup at M.D. Anderson the doctor told me it is the worst skin reaction she has ever seen with this drug. Needless to say I stopped taking it. She prescribed high doses of steroids for the remainder of the week, believing this will ease my pain.
I guess this is what people do to try to heal. I have read such horror stories about chemo and I have maintained that if this is as bad as it gets I could handle it. Maybe not!
So, “C Day” is seven days away (“C” stands for Radical Cystectomy). I won’t say I am looking forward to the procedure or recovery but I am hopeful about life after recovery. Very hopeful…
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