Bob

Another proud moment

2011-03-26T10:05:00.002-05:00

This year Seabrook Lucky Trails Marathon raised $35,008.34 for the Bridge Over Troubled Waters. Way to go!

Where have I been?

2011-03-24T13:44:00.005-05:00

Wow, I haven't posted since last August. I guess facebook makes it too easy so stay in touch I forget I have this blog.

Yesterday was my 2-year anniversary of being cancer free! I spent the day driving home from Lubbock, about 600 miles. Made for a long day but I had a nice visit with Brittany. Ginger and I went to La Brisa for Mexican food and cocktails to celebrate. Had a nice time! I was in bed by 9:00 and asleep by 9:01. I was sooo tired!

Some of my friends from BCAN want to have a gathering in October. I really hope it happens. Knowing them online is one thins; getting to meet them in person would be great!

Ed has left us...

2010-08-24T05:32:00.002-05:00

On March 14, 2009 Ed Nagle ran the Seabrook Lucky Trails Half Marathon. The next day Ed ran the full marathon. That's 40 miles in two days by a man in his 60's being treated for cancer. Ed ran these races in my honor knowing I would have surgery a week later. In fact I was so sick from chemo I couldn't attend the race on Sunday. Ed and his wife Marcia stayed in touch the past 18 months making sure I was okay. Ed passed away 9 days ago on August 14. Please say a prayer for Ed and his family...

Rest In Peace Dave...

2010-08-13T07:57:00.003-05:00

Dave passed away this morning, August 13 on his 45th birthday. During his treatment for bladder cancer Dave was a huge inspiration for many of us, especially me. His "just get over it" attitude was a breath of fresh air at times when we needed it most. I'll miss Dave...

Dave left these words just before his passing...

My beloved family, I have left my body but I have not left you.
We still have eternity, not just our years here which seem so few.

In your great pain, know that I have no pain so please let me go.
I enjoy many new experiences which someday you will know.

My beloved family, you were my strength, joy and my light.
I love you all so much and you will always be in my sight.

I know that my passing to new life has given you so much pain.
But like the rainbow, remember the sunshine before the rain.

My beloved family, you gave me such happiness and love.
I will keep sending you my love as I care for you from above.

It is only for a short time that we will be apart.
So keep on living, loving and laughing until then.

In the meantime, I will be near you with my warm embrace.
That is my presence you feel when you remember my face.

There will be a day when God calls you but you will not be alone
I will be there that day to greet you and welcome you home.

Another Birtday...

2010-08-07T10:50:00.002-05:00

I posted the message below one day before my birthday in 2009. It is as meaningful today as it was then so I’ve updated the dates and a couple of details for this year...

It was 17 months, 7 days ago (almost to the hour) when my doctor told me I had cancer. Not a day I’ll ever forget! A week later at the hospital, after surgery he changed it to really bad cancer (as if there were a really good cancer). My nurse told me to go off and become a miracle. Knowing it will take a miracle to survive was a little deflating.

A month later after another surgery at MD Anderson my doctor confirmed "really bad." They used words with lots of syllables like papillary, carcinoma and so on. They even scheduled me for another surgery that began with the word radical. Hmm...this is getting better?

All of the above occurred over a 6-week period. What a whirlwind!

One of my early prayers was “let me see Brittany graduate.” I was asking for two years. Seemed reasonable! Then I began to get greedy, asking for extra years to see the grandbabies grow up. They do need a grandpa!

As the days went by leading up to surgery I would not allow myself to think too far into the future because when I did a sense of disappointment and sadness set in. I had to be realistic…this was a complicated procedure that didn’t…well...you get the point!

Here I am one day before another birthday not caring too much about aging, looking forward to upcoming vacations and generally enjoying life. My immediate concern is ensuring I make enough margaritas for our gathering tonight. Adrianne, Alison and Brittany are all here, something that doesn’t happen often enough.

That’s the “one day at a time/live for the moment” thing I’ve become accustom to. Not a bad way to live!

So…Happy Birthday to Me!

Didn’t plan on making it this far but don’t plan on leaving too soon either! Hey, that sounds like a country song.

Rest in peace Ben!

2010-07-30T08:31:00.002-05:00

God saw you getting tired and a cure was not to be. So he put his arms around you and whispered "come with me". With tearful eyes, I watched you and saw you pass away. Although I loved you dearly, I could not make you stay. A golden heart stopped beating, hard working hands at rest...God broke my heart to prove to me, He only takes the BEST.

July 17 - Bladder Cancer Awareness Day

2010-07-16T20:47:00.000-05:00

In memory of every cancer patient, family member, and friend who has lost their battle with cancer and those who continue to conquer it!

Wild Animals...

2010-07-08T19:48:00.002-05:00

I'm standing. Now what?

I feel stupid. You look stupid!

This is going to hurt...

I have been warned!

2010-06-30T21:31:00.005-05:00

I have been warned not to post any more Snapping Turtle pictures or articles. So...I'm switching to kittens! Everyone should have a kitten...

Meet Oswald

He's aiming at...you guessed it...
a Snapping Turtle!

ALL CLEAR!

2010-06-22T12:43:00.001-05:00

Had my six month checkup this week. I am 15 months post RC and I am truly blessed...

Bob

My Story...

2010-06-02T11:55:00.010-05:00

I was asked to write this for a cancer awareness organization so I thought I would post it here as well.

After many years of taking my health for granted I took up walking and running as a hobby in June 2002. Wasn’t long before I was hooked! I completed my first marathon in January 2003 in Houston. Just to be clear, a marathon is a running event covering a distance of 26.2 miles. Not only was I hooked on running I had made many new friends; friends I’ll be close to forever.

I continued to train and run races for years, making more friends along the way. In early 2006 I decided to get serious...very serious! I was going to train like never before, lose weight and participate in two marathon challenges unique to Texas. The first was The Texas Marathon Challenge requiring you to complete five marathons between October and May; the second was Marathons of Texas, requiring you to complete Dallas (November), Houston (January) and Austin (February). Completing one of these challenges is formidable. Running them concurrently is a little over the top!

Picture a 54 year old man running along Clear Lake, starting anywhere from 3:00AM to 4:00AM, 4-5 times per week...IN THE SUMMER! Did I lose weight? You bet...54 pounds! I was racking up to 70 miles per week, going through a pair of running shoes every four weeks. I had never been healthier in my life! Or had I?

Starting in October 2006 I set out to complete eight marathons in twelve months...

October 29, 2006 – Marine Corps Marathon, Washington, DC
November 12, 2006 – San Antonio Marathon
December 17, 2006 – Dallas/White Rock Marathon
January 14, 2007 – Houston Marathon
February 11, 2007 – Austin Marathon
March 21, 2007 – Seabrook Marathon
October 7, 2007 – Bizz Johnson Marathon, Sierra Nevada Mountains, CA
October 28, 2007 – Marine Corps marathon, Washington, DC

Sometimes during training, especially the long, hot runs I would get the urge to urinate. This isn’t uncommon since I hydrate heavily during runs. But, when I would try to go nothing would come out. It wasn’t painful but very uncomfortable. Typically I would continue to hydrate after my runs and, in a few hours things would be back to normal. This actually started in January 2004 but I wrote it off to being an endurance runner. Endurance sports tax the body to such extremes that abnormal becomes normal...at least to us. Besides, I had never been healthier in my life! Or had I?

In August 2007 I saw my PCP in hopes that we would figure out what the problem was, assuming it was a problem. He did blood work and checked my prostate only to tell me I’m extremely healthy. He was thrilled I had lost 54 pounds. He did suggest a stress test considering my running habit. My cardiologist passed me with flying colors. I was perfectly healthy. Or was I?

At the Marine Corps Marathon in October 2007 I was gliding along when it happened. At mile 18 my abdomen cramped up in a way it never had before. I struggled to finish the final 8 miles but I did finish. Like always, it only took a few hours to get back to normal. BUT, I knew something was wrong. Did I go to the doctor when I got home? Of course not...I’m a Man! We don’t go to doctors...

I continued to run and have issues for another 10 months before I had had enough. The symptoms were worsening and occurring more often.

I saw a urologist in August 2008. After a basic exam he told me I had micro hematuria, trace amounts of blood in my urine. He said it is a common condition in runners because the bladder takes a beating, especially when one runs long distances. I passed a flow test so we assumed there was no blockage. He asked me to come back in a few weeks to test my urine again. He told me not to run the day of the test. I did go back but got irritated with the long wait and left. I figured I was healthy so why go back.

Hurricane Ike forced us to evacuate to north Texas in September. At a rest stop I noticed my urine was very dark, probably from not drinking enough water...OR? The next day I went to the bathroom and saw bright, red, thick blood when I urinated. No pain or discomfort. Just blood! I immediately called my urologist but Ike had everything shut down. I drank tons of water over the next few hours. No more blood!

Now you would think a fairly intelligent person like me would hurry to the hospital after peeing blood. Not Bob! I just assumed it would go away. It didn’t! After several recurrences over the next couple of months I went back to my urologist. Now we are dealing with gross hematuria. He scheduled CT Scans, blood work and a cystoscope, a procedure where they look inside your bladder with a camera inserted through the urethra.

January 2, 2009... “You have bladder cancer! Two large masses in the bladder, one of which is blocking the urethra. You need surgery as soon as possible to remove the masses and determine the stage of your cancer. I have scheduled your surgery for Monday, January 5.” My only response was to ask him to call in my wife, Ginger and explain this to her. That was arguably the most painful day of my life. Telling my daughters I was sick was more than I could handle so Ginger stepped in to help.

The surgery was supposed to be an outpatient procedure. I ended up staying three days for pain management. Thursday, January 8, 2009... I’m still in the hospital, waiting for my doctor to release me. My oncology nurse (Debbie) came in with my doctor. He was visibly shaken, to the point he had to sit down. I remember a few of his words like high-grade, dangerous, and scary and so on. He referred me to MD Anderson Cancer Center (MDA). Instead of calling an orderly, Nurse Debbie wheeled me to my car. I’ll never forget her words... “Ask God for a miracle. When it happens tell people.”

My first visit to MDA was a whirlwind full of tests, scans, discussions, interviews and an occasional nap. It was Tuesday, February 3. My doctor (Ashish Kamat) said you’re scheduled for surgery on Thursday, two days from now. It was the same as my first procedure but this time he would be staging my disease. It went off without a hitch.

Dr. Kamat talked with Ginger while I was in recovery. He told her it was likely he would recommend a radical cystectomy (RC), removal of the bladder, prostate and surrounding lymph nodes. He believed due to my excellent health, other than cancer, I would be a candidate for a neo bladder, constructed from my small intestines. It is as close to original equipment as you can get. He said I would be able to run again and lead a long, normal life. BUT, this was all dependent on the pathology report. Now we wait!

During the waiting period I was dog, damned determine to keep my bladder. I figured they can do chemo for whatever period of time and that would do it. I didn’t have to have the RC if I didn’t want to. So there!

So much for being dog, damned determine to keep my bladder. T1G3 was the diagnosis. I was extremely fortunate we caught it early. Dr. Kamat offered BCG (chemo) but told me I had a better than 80% chance the cancer would return in an aggressive way. He used words like dead and done (as in dead) if that happened. He scheduled my RC for March 23, 2009.

Surgery lasted seven hours and went off without a hitch. I was on liquids day one; soft foods day two and then cleared to eat at day three. My hospital stay was six days, slightly less than average. I went home with a catheter and kidney stints still attached so my new neo bladder could heal. They would be removed at my three week checkup.

I have to admit I got a little depressed during recovery. I’m not one to sit around let alone have to be cared for. Ginger was (is) a saint. She made sure I was fed, cleaned, entertained and rested. She got on me to get up and move around, a critical requirement for quick recovery. My little dog Lucy stayed near me the entire time.

At my three-week checkup I had another scope where they looked inside my new bladder for leaks. It was doing fine. My catheter, stints and staples (over my incisions) were removed.

Remember nurse Debbie and the miracle? IT HAPPENED!

Dr. Kamat gave us the news. The cancer was contained in my bladder and there was no involvement in the lymph nodes. I am cancer free. No need for chemo! Just come back in three months for another checkup. Ginger and I cried like babies. I couldn’t call my daughters fast enough. We celebrated with a Whopper Junior at Burger King...the best tasting burger I have ever eaten.

As the weeks passed I continued to gain strength. At eight weeks I actually walked/jogged about six miles. Silly me! I over did it. I didn’t hurt anything but clearly my body wasn’t ready to go full speed. I went back to work after ten weeks.

As I write this I am fifteen months post RC and I am strong and healthy. Better yet, I’m still gaining strength. I am back into running and losing weight again. My goal is to run the Athens (Greece) Marathon in 2012 at the age of 60. This is the original marathon run 2,500 years ago. It would complete my comeback in a meaningful way.

So, how did a guy like me get bladder cancer? I smoked at least a pack of cigarettes a day for over 30 years. No doubt in my mind that was the cause. In fact smoking quadruples your chances. Although I quit smoking at age 50 the damage had already been done...I just didn’t know it! I probably had the disease for at least six years prior to being diagnosed. So if you smoke...STOP! NOW!

People assumed I was scared during treatment. I wasn’t! I was profoundly saddened at the thought of not seeing my youngest daughter graduate from college or not being able to spend time with my grandchildren. I asked God to give me a couple of years to get to graduation and maybe a few more with my grand babies. He gave me even more! Like I said... IT HAPPENED!

In closing, I would say be your own advocate. I should have been diagnosed at least a couple of years sooner. If something feels wrong it probably is. Most of all, know there is hope. Cancer is not a death sentence. It’s a treatable disease if caught in time. God’s Peace!

One Year!

2010-03-23T07:15:00.002-05:00

Today is my one-year anniversary of being cancer free. Thank you to everyone who has pulled for me during this very difficult year. I could not have done it without you…

Bob

We did it!

2010-03-21T17:56:00.004-05:00

We did it! Team F.C (Fighting Cancer) completed the Seabrook Lucky Trails Marathon Relay today. It was sooo cold...29 wind chill at the start. Despite the sunny day, it remained windy all day making it a pretty chilly event. This was my first race in two years, since being ill so it was a very special day for me and I couldn't have picked better teammates.

If you're wondering what the graphics are on our chests look at the previous post. We chose the "Never Give Up" slogan used at MD Anderson.

Team F.C.
Lori & Brenda (front)
Me & Ginger (back)

Don't EVER Give Up

2010-03-13T19:54:00.002-06:00

MD Anderson sells a tee shirt with this cute message on the front and back...

A lot of changes since I last posted…

2010-03-09T06:14:00.004-06:00

After 16+ years I resigned at Casual Male. After nearly two years of commuting to Dallas I had had enough. I just wanted to go home. So, I took a leap of faith by quitting without having a job lined up. No regrets! Well, there is one…I don’t get to see Alison, David and the boys as often. I will miss that…

I am working again, doing something entirely different from the previous 30-some years. I don’t make the same income; no laptop; no company car…but I am happy! I’m home every night and don’t have to travel.

Ginger and I planted trees last Sunday. A pear and two lime trees! Hope to have fruit within the year. We also took out some dead shrubs and trees, getting ready for spring. We’re here for the long haul so we’re going to make some improvements. Fence, landscaping, patio, etc. It’s so good to be home.

Brittany comes home this Thursday for spring break. Can’t wait to see her! She’s spending the entire break here, a switch from previous years. It will be good having her at home. She has two internships lined up for the summer. One locally, early in the summer; the other in the Myrtle Beach area. She’ll get to stay with Adrianne. We’re so happy for her.

Ginger and I are teaming up with Brenda and Lori to run the Seabrook Lucky Trails Marathon relay in a couple of weeks. Each of us will do a 10K. This will be my first race since…hmm…in over two years. WOW! Time even flies when you’re NOT having fun.

Jelly Belly RV Tour

Happy New Year!

2010-01-06T03:23:00.002-06:00

This won't come as a surprise to anyone... I am so happy to have 2009 behind me! Life is good...

The Family

2009-12-29T05:44:00.008-06:00

At Christmas we received a collection of photos of our girls and their families. No need for words...

Braden

Trent

Teagan

The Jones Family

The Cossey Family

Braden, Teagan, Trent & Carter

2009-12-26T17:05:00.002-06:00

Christmas began at home in League City. After a quick present opening session we loaded the car and truck and took off. Brittany and I stopped at MD Anderson to drop off some treats for the nursing staff on the 4th floor. They took such good care of me me (and Ginger) when I was sick.

We met Ginger at Buc-ee's in Madisonville and caravaned to Heath. Christmas night at the Fontenot's was as special as ever. For me this was year number 22. Below is a picture my niece Hayley and Brittany. They have grown into beautiful young ladies.

I clearly remember a year ago wondering if I had another Christmas coming. Today, I don't look too far ahead. I really do try to enjoy the day at hand. I really enjoyed this day...

Merry Christmas!

All Clear!

2009-12-16T08:27:00.004-06:00

I had my nine-month checkup at MD Anderson yesterday. They gave me another all-clear. I'm good to go for another six months. Hopefully I'll be on the annual plan after that. Thanks to everyone for your prayers and good wishes.

East Texas Valley

A cold front blows into south Texas...

2009-12-04T16:41:00.001-06:00

Driving home yesterday I saw this beautiful cold front overhead and had to stop and take a picture. It's blowing through the Gulf Coast now, bringing snow and freezing temperatures. Guess Ginger and I have to stay in, watch movies, drink wine...

Where have I been?

2009-12-02T10:30:00.004-06:00

No excuses! I've just been lazy about posting to my blog.

We spent Thanksgiving at the Fontenot's. As always the food was amazing. Brittany spent the holiday with us; Adrianne & Alison were in Calabash. Football was pretty good. UT beat A&M, Tech beat Baylor and the Cowboys beat (down) the Raiders. The perfect ending was on Monday night when the Saints hammered the Patriots with Drew Brees showing Marsha...uh...Tom Brady who the best QB in the NFL is.

My one regret for November is not being able to attend the San Antonio Marathon. My friend Ed Nagle invited me to volunteer with the Cancer Society. I was just too worn down from travel to make the trip. Some day I'll be back at full strength...

My six-month checkup is two week's away. I'm not at all nervous and I'm really looking forward to seeing my medical team. Dr. Kamat won't be there but everyone else should be. I don't have to do all those invasive tests like before so it should be an easy visit. Don't get me wrong! I don't take my health and good fortune for granted at all. But I'm not going to sit around and whine or worry about what might be. The quote below keeps me focused...

"The remarkable thing about fearing God is that when you fear God you fear nothing else, whereas if you do not fear God you fear everything else."

Happy Holidays!

As you can see by the picture winter has arrived in Frisco...

Third Day In Concert

2009-10-25T18:59:00.006-05:00

Ginger and I went to see Third Day Friday night. IT WAS AMAZING! We sat four rows from the stage, dead center. We could have sat in the front row but were concerned about the volume. Before the show I met the band in the meet'n'greet area. We had VIP passes. After the show we hung out with the band back in the meet'n'greet area. Mac Powell (lead singer) was kind enough to take a picture with us.

The highlight of the evening was us adopting a little boy in Rwanda. His name is Jean Marie. We've committed to helping feed him. Hopefully we'll get to write and even meet him some day.

The view from our seats...

Hanging out with Mac...

"THIEF"

(excuse the audio...turn down the volume)

My little Teagan...

2009-10-08T13:02:00.004-05:00

Why do I have to laugh when you take pictures?

You're this close to making me mad...

I'm leaving and taking this friggin' monkey with me!

Flag Football, the sequel...

2009-10-07T05:37:00.005-05:00

Carter attended big brother's practice too. He didn't run much... actually not at all. The little dude can't walk yet. He did hang with the girls getting hugs, kisses and Gold Fish. Emphasis on Gold Fish! The boy does not miss any meals!

Carter & Grandma Ginger
(nice shades)

Another video of Trent running, actually racing his little buddy Austin. Trent falls but jumps right back up and takes off. It is so fun being a grandpa...

Run Trent, run!

2009-10-05T06:13:00.003-05:00

So Trent had his first flag football practice at the Frisco YMCA on Saturday. These kids are so cute. If you tell them to run you better also tell them when to stop.

Happy Birthday Ginger!

2009-09-27T17:27:00.002-05:00

Last night we gave Ginger a surprise birthday party. Here's the video showing her reaction.

This party was in the planning for two months but we did manage to keep it a secret. I can't thank Diana & Brenda enough for their help.

Had you told me 22 years ago on the day I met Ginger I would celebrate her 50th birthday with her I would have believed you and been very happy about it...

2009-08-25T09:05:00.001-05:00

I could almost repeat last week’s post. I traveled back through east Texas, into Louisiana and then back to League City. A pretty long week in terms of work and hours; but a good week nevertheless!

Saturday, Bay Area Running Club hosted the 9^th Annual Pub Crawl. This “event” covers 6 miles and bars, ending at the bar on Clear Lake where we celebrate by…well…drinking more. I wasn’t up to the distance but I did drive to a few spots to hang with my friends. We had a blast.

The theme this year was Woodstock’s 40^th Anniversary. Lots of folks dressed the part although most of them are too young to remember the music festival…I’m not! My club members even carried a 15 foot joint along the route, kind of like Cheech and Chong.

I’m back in Frisco this week, working from the apartment. Ginger will be up this Thursday. Can’t wait!

Some of these people actually ran...

A good week...

2009-08-15T07:35:00.004-05:00

My week began at home in League City. On Tuesday I drove to Bossier City, LA. I always enjoy the trip through east Texas. A lot of people don’t realize how pretty the scenery is. I saw hills, pine trees, more hills, farms, ranches and some of the quaintest small towns you’ll ever see.

The roadside farmers are everywhere selling tomatoes, melons and other home-grown vegetables. Trust me, they’re worth stopping for.

I made it back to Frisco Thursday. It’s starting to feel like home (#2 of course). Ginger and Brittany arrived Thursday evening. We found a cool little seafood restaurant nearby…really good food at low prices.

Last night (Friday) Alison and the boys came by for dinner. Unfortunately I was so wiped out from the week’s activity I sat around and yawned all night. Didn’t slow Trent down though! He’s a bundle of energy all the time. Add ice cream for desert and you have a nuclear kid! He is so happy. Carter was his usual, laid back self. He always looks like he has something to say but hasn’t figured out how to talk yet.

Brittany left for Graham around 9:00PM. She’ll head for Lubbock tomorrow morning. Hard to believe she’s a junior already. What happened to high school?

Ginger and I will head back to League City tomorrow. Then another Bossier City/Tyler run for me next week. Life goes on…

The "kids" playing on the slide...

Alison & little Carter...

Carter flirting with Aunt Brittany...

Another Birthday?

2009-08-07T12:00:00.002-05:00

It was 8 months, 7days ago (almost to the hour) when my doctor told me I had cancer. Not a day I’ll ever forget! A week later at the hospital, after surgery he changed it to really bad cancer (as if there were a really good cancer). My nurse told me to go off and become a miracle. Thinking its gong to take a miracle to survive was a little deflating.

A month later after another surgery at MD Anderson my doctor confirmed "really bad." They used words with lots of syllables like papillary, carcinoma and so on. They even scheduled me for another surgery that began with the word radical. Hmm...this is getting better?

All of the above occurred over a 6-week period. What a whirlwind!

One of my early prayers was “let me see Brittany graduate.” I was asking for two years. Seemed reasonable! Then I began to get greedy, asking for extra years to see the grandbabies grow up. They do need a grandpa!

As the days went by leading up to surgery I would not allow myself to think too far into the future because when I did a sense of disappointment and sadness set in. I had to be realistic…this was a complicated procedure that didn’t…well...you get the point!

Here I am one day before another birthday not caring too much about aging, looking forward to upcoming vacations and generally enjoying life. My immediate concern is ensuring I go to Carlos’ Beer Garden tonight for burgers and beer. That’s the “one day at a time/live for the moment” thing I’ve become accustom to. Not a bad way to live!

So…Happy Birthday to Me!

Didn’t plan on making it this far but don’t plan on leaving too soon either! Hey, that sounds like a country song.

2009-07-14T06:06:00.002-05:00

I know it’s been a long time since I posted last. Sorry! This past month has been extremely busy. Work has been a constant stream of travel, training and inventories. I was eight weeks behind when I returned so I’ve been playing catch-up. Things will get easier once we move into our Frisco apartment.

Speaking of Frisco…what a perfect segue. We move tomorrow! Friends are helping us load the UHaul tonight, before they start drinking. We leave early tomorrow morning. David and Glen will help us unload and then Ginger and I spend a few days setting up our new home-away-from-home.

What else? Brittany leaves for Calabash on Saturday, spending a week with the Cossey’s. She’s so excited about seeing Braden and Teagan, Adrianne and Nigel too.

Ginger and I have a couple of trips planned too. Over Labor Day we’ll visit Indianapolis for a few days. On the way home we’ll stop in Memphis to visit St. Jude Children’s Hospital. I’ve had a deep appreciation for St. Jude for some time but now it’s even deeper… In October we’re heading for Calabash. We’re hoping to spend a little time in Charleston and Savanna too. Shoot, we may not come back!

Finally, I’m still recovering from my illness, getting a little stronger as time goes by. Some days are better than others but they’re “my days” and I’m happy to have them. This past Saturday Ginger and I ran, jogged, walked and limped near six miles. Yesterday I did another 3+. I’m not in the best shape but in time it will come. I still intend to do the San Antonio Marathon in November…

Braden Teagan
Trent

Carter

Early Fathers' Day for Bob...

2009-06-23T16:18:00.002-05:00

I got to see my girls in Heath a week before Fathers' Day. Not only my girls...I got to see my favorite (only) grand daughter Teagan. What a treat! And what wonderful blessings...

All Clear!!!

2009-06-16T17:16:00.003-05:00

Had my three month (post surgery) checkup at MD Anderson yesterday! Blood work, x-rays and CT scan. I met with Dr. Kamat today to go over the results. He gave me another “ALL CLEAR.” He even accused me of showing off by being in good shape. I don’t have to go back for six months. I’m still a little overwhelmed by it all. Actually very overwhelmed!

On a different note, I do have a couple of tips to make these follow up exams fun:

1) In the CT Imaging area you fill out a questionnaire when you check in. The third question is “Are you breast feeding?” I checked YES to see if they would notice…they didn’t!
2) Another question asks “Are you aware of the rectal contrast procedure?” I checked NO but stated I would probably be aware if/when it happened.

Thanks to all of you who continue to support me through this new life. Hopefully I can return the favor.

2009-06-06T17:13:00.002-05:00

Wow, I waited a whole week to update the blog. Sorry!

I spent Monday through Thursday in the Dallas area. I stayed with my lovely sister-in-law Jayne at her (my) home in the country. It’s so peaceful I don’t want to leave sometimes. But there are these things called work and reality I have to deal with.

Tuesday was fun. I met Jayne, Glen, Paul and Gail at Gail’s house after work. We sat out back and drank Coronas and ate pizza. There were absolutely no discussions about diets, points, weight etc. We just ate and drank. Life is good!

This was my first week on the road, in the stores. I did okay. My feet got a little tired from the ongoing nerve issues and I got tired just because I’m out of “work” shape. I probably pushed a little too hard, trying to visit all stores in 2 ½ days. Typically I’ll visit one store per day. Anyway, it’s good to be back. Next week I’ll be in training for a couple of days and then head back to DFW on Thursday.

I stopped by my new apartment complex. I like the location of our unit. Can’t wait to get moved in next month!

Nine days until my three-month follow up at M.D. Anderson. I’m planning on getting another “all clear” from my doctor.

I used to drive this...1969 Roadrunner...Beep, beep!

A dose of reality...

2009-05-30T15:32:00.004-05:00

The message below is from a 53 year old woman "K" on my cancer network. Makes me realize how precious time is.

A few things I want...

I want to see Brittany graduate from college. I want to walk her down the aisle at her wedding like I did with Adrianne & Alison. I want to see Adrianne and Alison grow as ladies, parents and wives. I want to spend time with my grandchildren, spoiling them as much as I can. I want Ginger and me to have peace in our lives…not too much peace, just enough to help us stay focused. I just want to live a little...

From K,
I'm sneakin' this in here because I can't bear to either start a new discussion or talk individually to some of my new friends here. Uh....I'm apparently too bad off for CHEMO! Cripes, that can't be good. It's a benefit/risk thing, at this point, and with my pelvic cavity having so many lack of blood-supply issues, there's not even much likelihood the meds would MAKE it to my pelvis. And if they DID, their very toxicity would destroy what little viable tissues remain. So, the end is near, the sky is falling, don't cry for me Argentina. This is something I've felt coming my way for quite some time. This year actually marked HALF MY LIFE as a cancer survivor. My prayers, as a woman of 26, were to please let me watch my girl grow up. I GOT that incredible gift (as SHE is), and a bonus of a lovely 15-year-old granddaughter. So how, exactly, can I feel bitter or "unfair!" ? I've been blessed thru my entire journey. One reason my Cancer Team is having such a hard time treating me is that I've LIVED so long; my tissues are just dissolving. Life is good. Don't sweat anything you don't HAVE to. PLANT the flowers you wanna smell. Love everyone in your life. And realize that every single moment, even the hard as hell ones, are gifts. I will be withdrawing, more & more, from my online forums. I have a lot to do, and some places I need to go. (My chances of 5-year-survival, with OR without chemo, are zero. So time's a-wastin'.) I'm grateful for all the info, support, and kindness I've encountered here. I wish you all NOTHING but the best, and good health for yourselves and your loved ones. Please don't feel "sad" for me....we all gotta go, and at least I know I won't be the crazy 90-year-old cat lady, two foot tall & mean as hell, at the end of the block. There's a measure of comfort in that, alone. Bwahahahaha......

IN JOY,~~K

2009-05-29T15:28:00.002-05:00

This was my first week back at work. Other than getting a little tired late in the day, it was pretty uneventful. I had lots of emails and stuff to read, just to get caught up. Next week I’ll be in DFW. I’m excited about being on the road again. As much as I love my home being in the house for three months has been tough. Then again, it may have something to do with recovering from cancer. DUH!

Here’s a photo Ginger sent entitled Patience…

Old pictures...

2009-05-25T14:12:00.001-05:00

nuff said...

I have been blessed by children…

2009-05-20T09:44:00.003-05:00

I had the privilege of being a member of the St. Jude Heroes Running Team in 2007. We ran the Marine Corps Marathon in Washington D.C. to raise money for the children. We met in our plush, private tent in Charity Village prior to the start of the race. We were treated like royalty. We were all excited, joking about the close proximity of Arlington Cemetery to the finish line. That’s when “IT” happened…

On the wall of the tent were several signs with the St Jude child logo. From a distance I noticed scribbling all over the signs. I moved closer to see hand written names with messages like “Good Luck Heroes.” I asked the director what I was looking at. I was completely overwhelmed and brought to tears by her answer.

She told me the kids at St. Jude Children’s Research Hospital sent the signs to thank and wish us good luck. Children, many of whom were terminally ill were wishing “ME” good luck. Some of the bravest children you could ever see!

This turned out to be one of my toughest races. Unbeknownst to me I had bladder cancer (this was a year and a half before my diagnosis) and at mile 20 stomach cramps set in. I never considered quitting, though. These brave, sick little kids had wished me luck and I wasn’t about to let them down. Running those final 6 miles seemed to take an eternity but as I crossed the finish line I realized these kids had carried me.

They have continued to carry me for some time. I think of them often when I’m in treatment. God willing I’ll run for them again when I get back to full strength.

Life goes on...

2009-05-19T08:11:00.002-05:00

Ginger and I are spending Memorial Day weekend at Jayne’s in Heath, our country home away from home. I feel so relaxed when I’m there. I could use “relaxed” right now.

We’re driving up Friday morning. Ginger will go home Sunday or Monday. I’ll be staying for the week. I go back to work Tuesday, 5/26. It’s going to be a busy week. Everyone is telling me to take it easy. Don’t worry, I will!

Gail and Paul get married in June. That should be fun! I’m looking forward to the post-wedding party at Gail’s house. I even reserved a hotel nearby so we could have fun without worrying about the drive.

My next round of tests at M.D. Anderson is Monday, 6/15. I’ll have variety of scans, x-rays and blood work. I return the next day to go over the results with Dr. Kamat. Even though my post-surgery pathology showed all clear it’s hard not to be a little anxious about these tests. Oh well, got to stay positive.

Can’t wait to move into our Frisco apartment…it will make life so much easier. We’re going to visit the complex this weekend. We’ll probably shop for furniture too. We need a sofa, lamps and other “stuff.”

Last Saturday morning I met with our running club at Clear Lake Park. First time I’ve been out since last summer. It was so good to see my friends. I walked 3.5 miles with Vicki Beck. I was pretty tired at the end and for the rest of the day…but it was a good tired. I’ll keep working to increase my distance a little at a time.

Life goes on…

A random act of kindness…

2009-05-15T07:48:00.002-05:00

Recently I discovered an online network of people (Inspire.com) who have the same disease as me, bladder cancer. In a short period of time I’ve made a number of friends. We discuss everything from our treatment to our children. It’s a wonderful support group, one I wish I had found a long time ago.

There are several members in the Houston area that I have connected with. One, Cheyenne, had surgery at MD Anderson yesterday. Cheyenne's wife was unable to attend, although she wanted to, so Lynda, a member from Willis, and I went to MDA yesterday to be his substitute family. I met both for the first time.

I had a wonderful visit with Lynda while Cheyenne was in surgery. Her husband is an eight year survivor of leukemia and she is currently living with bladder cancer. Both she and Cheyenne are contemplating the procedure I had, a procedure that that can be intimidating. Having seen me in pretty good shape, seven weeks after surgery gave them a little hope for a good outcome. Sometimes just being there for people helps.

After his surgery Cheyenne was released to go home. Unfortunately home is an hour and a half away and his wife wasn't able to pick him up at that time. So…Lynda took him home and put him in her guest room. That’s right; a total stranger helped someone in need. What an act of kindness! That’s what these people are like. Cheyenne’s wife will pick him up today or tomorrow and take him home.

Regarding me, still planning to return to work on May 25…

Quick update..

2009-05-11T17:29:00.003-05:00

It’s been seven weeks since surgery. WOW! It seems like a year. I’m still getting stronger. I walked near 2 miles this morning, even jogged a little…very little. I am hoping walking will help the nerve pain in my legs.

I’m not registered for any races but I am supposed to do the San Antonio half marathon with Alison in November.

Alison, I hope you’re training. Bob/me, I hope I can really do it.

Today, 13.1 mile seems impossible. A few weeks ago 2 miles seemed impossible. Progress…

I plan to return to work on May 25, one week early. I’m feeling pretty good and I need some activity (i.e. work) to make me feel better. I have a lot to catch up on so it will be a busy summer.

My three girls...

2009-05-09T14:40:00.002-05:00

Alison, Brittany & Adrianne...am I lucky or what?

Historical Landmark

2009-05-06T15:26:00.003-05:00

Have you ever seen a two-story What-a-Burger? It’s a must-see in Corpus Christi. Take your family and your cameras...it’s better than seeing the Statue of Liberty. It will take your breath away. Click on the picture to see full size...see the two girls standing on the balcony.

Our new "other" home...

2009-05-05T09:59:00.005-05:00

We are so excited… We rented an apartment in Frisco this past weekend, sight unseen…sort of. The complex is located in a great area, close to Stone Briar Mall with easy access to shopping, restaurants, highways and, best of all, Alison, David and the boys.

The plan is for Ginger to come to Dallas every other weekend since she’s off every other Friday. The other weekends I will go to League City. This will reduce my driving by near a thousand miles per week plus it will make my work life much easier. I’ll be in close proximity to all but three of my stores. The weekends I’m not at the apartment Brittany can use it if she wants to visit Dallas.

I continue to get stronger each day. It’s my hope that I can return to work prior to June 1, maybe one to two weeks earlier. It’s getting to be that time…

Brittany will be home tomorrow...

Cypress lakes at Stonebriar

Pool & Rec Center
Indoor Basketball Court
Workout Center

My newest grand babies...

2009-05-03T10:15:00.003-05:00

Alison sent us a few photos of the new babies...actually I took then from Alison's blog.

Carter

Teagan
Teagan & Carter

Another good week...

2009-05-02T10:13:00.001-05:00

Alison and the boys went home Monday. Ginger and I missed them the second they drove away. The house was so “alive” while they were here. Trent was always into something, keeping himself (and us) entertained. Carter just lays there and takes it all in. Can’t wait until they visit again!

My week has been pretty good. I’m getting stronger, sleeping a little better and thinking more clearly. The one remaining problem is nerve pain in my legs. Apparently the positioning on the operating table traumatized the nerves. My doctor tells me this is normal but it may be months before it heals completely. My leg muscles are strong; it’s just surface pain that gets uncomfortable. My PCP was kind enough to prescribe a drug specifically for nerve pain. It seems to help some and will hopefully help me heal faster.

Last night I drove for the first time in six weeks. Felt good! Ginger and I went to dinner (another six week first) at Dos Mas, our favorite Mexican restaurant. We even shared a margarita. Those of you who know me well know I don’t usually share cocktails. I have to ease back into drinking…

Next week I hope to do some light jogging…and I do mean light! If jogging is too hard then I will walk. I just can’t sit around anymore plus I want to keep the weight off.

BIG EVENT NEXT WEEK… Brittany comes home for the summer!

Grandpa-Bob & Trent

Random stuff...

2009-04-25T17:03:00.003-05:00

The boys are here…

Alison arrived yesterday with Trent and Carter. It’s been fun every since. “Busy” describes Trent best. He always has something going on. He’s so much fun. Carter is pretty laid back at this point. He just lays around looking at the world go by. He likes to have someone near him.

This morning Alison asked if Carter woke me last night. He didn’t. She said he woke up at 3:30 and 5:30 to “talk and fart.” Hmm…sounds a like a man in his fifties.

You can never have too many friends…

Our dear friend Terry Frank stopped by this morning. Terry brought us a barbeque brisket…a huge barbeque brisket. Guess what we’re having for dinner. Terry has been one of our biggest supporters throughout my illness. She sends us inspirational quotes and messages of encouragement regularly. As I said, Terry is a dear friend.

Getting stronger...

Apart from some weird numbness/pain in my legs I feel pretty good. I plan to extend my walks next week to build up some endurance. Monday will mark five weeks since surgery. My goal was to be walking (maybe running) at six weeks. We’ll see…

Passing the time...slowly.

2009-04-22T18:13:00.003-05:00

I knew it would happen eventually…boredom.

Since I’m limited physically and fairly tired every day I spend quite a bit of time sitting. I try to stay busy reading, blogging and watching TV. For exercise I walk around the house, up and down stairs. I go outside with Lucy and walk up and down the sidewalk. I always end up back in my big chair, usually taking a nap mid-afternoon. That’s as good as it gets for now.

Are you hungry?

I watch the Food Network constantly. My favorite show is Diners, Drive-Ins and Dives. It’s comfort food at its best. I’ve actually downloaded several recipes. When I’m feeling better and can get to the store I'll try some of them. I also like any show with Bobby Flay. He grills all sorts of foods. Grilling is my favorite way to cook. As much as Ginger has taken care of me the past few months I certainly intend to cook for her when I get stronger.

Big weekend coming up…

Alison and the boys are visiting this weekend. They’re due to arrive Friday, staying through the weekend. I can’t wait to see them. Grandpa will be a little boring this trip but Grandma Ginger won’t. She loves to spoil those babies.

Trent after he found out he's coming to visit me...

(I made that up)

Brief update...

2009-04-21T09:39:00.002-05:00

Saturday’s flood waters receded just in time. We ended up with a little water in the garage but none in the house. We were fortunate. Many people in our area had water damage. Sunday, Ginger cleaned up the yard. I so wish I could help her but I have to lay low until I heal.

I feel a little stronger each day. My appetite is good and my weight (loss) has stabilized. I don’t mind losing weight but there are better ways to do it. My incision is healing and shrinking, now that the staples have been out for a week. My two “wounds” are closing and should be healed soon. Overall I feel pretty good.

Big CONGRATULATIONS to my niece Ashlie! Ashlie completed her first triathlon in St. Augustine this past weekend. That would mean swimming in the ocean, a tough way to do your first event. I admire anyone who can do the training let alone complete an event. Way to go Ashlie!

Brittany will be coming home in a few weeks. Can’t wait to see her! I know she has a busy summer planned but it will be good to have her home. I’ll still be on medical leave when she gets home so I’ll get to spend some time with her.

What next?

2009-04-18T16:24:00.001-05:00

As if we haven’t had enough challenges of late… It started raining this morning. Then it rained some more, and more, and more. Here are a few snapshots from our front door. The water is up to the house with a little in the garage. Hopefully it will let up soon before it gets into the house.

Let's make some memories...

2009-04-18T11:51:00.000-05:00

I don't need to look very far for motivation to get healthy. I want my four, darling grandchildren to know me as a fun, loving grandpa for as long as possible.

My mother’s father passed away when I was very young so I didn’t know him. My father’s father lived into his 90’s. He lived on a farm in Ontario (Canada). We visited every summer and at least one Christmas. That Christmas I remember him hooking two horses to a big sled and taking us for a ride through the fields. It was like a Budweiser commercial. I have very fond memories of our visits to the farm, and Canada.

I don’t plan on having a farm but I do want the grandkids to enjoy their time with us. I look forward to making fond memories with them…

Braden & Teagan

Trent & Carter

Super Tuesday

2009-04-16T14:51:00.002-05:00

It’s no secret I was looking forward to Tuesday, the day my tubes and staples would be removed. It turned out to be more eventful than I had anticipated.

Riding to M.D. Anderson I became nauseas and very dizzy. When we arrived Ginger had to put me in a wheelchair to get me to the clinic. I felt so bad for her. She had all of our “stuff” to carry plus me to push. It was a rough start to the day. It was 8:00 AM.

First stop was for my cystogram, a contrast x-ray of my new bladder. They laid me on a table with all kinds of machines hanging from the ceiling, stuck more tubes in me and injected fluids. It wasn’t painful but was uncomfortable. They took pictures from all angles. I actually got to see them on the monitor. My new bladder looks like the old one, albeit cancer free. We were finished at 10:00 AM.

Our next stop was at Dr. Kamat’s area. We arrived a little after 10:00. We found out our appointment was for 2:00. The receptionist checked us in anyway and told us we wouldn’t have to wait long. We got in just before 11:00.

Let the waiting begin…

Suffice to say we were in an examination room for four hours. First the P.A. came in to assess my condition. He told us the cystogram came back good, meaning the new bladder was intact and ready to go. Next (but some time later) Dr. Kamat came in. He told us everything looked good and that the staples and tubes would be removed. I was so happy!!!

Now for the BIG NEWS…

Dr. Kamat had several pages of data in his hand. He told us it was the pathology report from my surgery. It showed that the cancer was gone. All lymph nodes and organs are clear. I understood what he was saying but didn’t really grasp it at that moment. I just kept thanking him. He told us we didn’t need to come back for three months. As soon as he left, Ginger and I broke down in tears. It was joy, gratitude, relief and appreciation all rolled into one, big cry.

Let the fun begin…

The P.A. returned to remove my kidney stints. He said I might feel some pressure. I’ve learned “pressure” in medical terms means pain. He was right. It felt like my left kidney was being removed with a line and fish hook.

Next, the nurse came in to remove the catheter (that had been in for three weeks). She said it would be uncomfortable. If pressure means pain what do you suppose “uncomfortable” might be? OH-MY-GOD!!! Leave it at that. Poor Ginger had to witness all of this.

Next, time to remove the staples. We’re talking metal staples. The nurse said it would feel like mosquito bites…really big mosquitoes. It wasn’t fun but tolerable after the catheter.

Finally, a visit from the WOC Nurse. She taught me how to self-catheterize, learn to control the new bladder and care for my wounds.

Now it’s on me to regain my strength and get back to normal life as soon as I can.

Three days to go...

2009-04-11T12:50:00.003-05:00

My little dog Lucy has become my constant companion. I’ve been sleeping on the sofa in our family room since I came home. It’s just easier for me to maneuver while I still have these tubes. Lucy, who normally sleeps in her bed in our bedroom, has stayed with me every night. She’s decided to watch over me while I recover. One night this week I decided to lay down in our guest room. Lucy slept under the bed while I napped. The unconditional love of a dog is a true form of healing.

I’ve been counting the days until the 14th. I so want to lose the tubes, have the staples removed and move forward with recovery. I still have a long way to go but mobility will help a lot.

Ginger is on a mission to win “Yard of the Month” in our subdivision. I swear she’s planted flowers everywhere these past few weeks. I haven’t seen them but I’m sure the yard looks great. What a woman!!!

The one and only Lucy...

Ten Days Later...

2009-04-08T14:33:00.004-05:00

I’ve been home ten days. It’s been quite a journey so far. The most noticeable change is my strength. Last Tuesday I walked up the stairs, sat on the bed and passed out…literally. I went too fast, too soon. Now I can make multiple, albeit slow, trips every day. I can even give myself a shower. Getting up and down from my chair is easier too. I haven’t used my walker in a week.

Next Tuesday, April 14, I go back to the doctor for my first follow-up. My two “tubes” will be removed along with my staples. CAN’T WAIT! After that, some rehab and continued recovery.

While Ginger continues to be my special caregiver, a friend and nurse, Vicki Beck has also been a special blessing. A portion of my incision has to be treated (repacked) twice a day. Neither Ginger nor I felt comfortable doing this. When I came home it took 16” of gauze to fill it…it was that deep. It can be painful. Since day one Vicki has stopped by twice a day to do this for us. The wound is now ½” deep and healing. Thank you Vicki!

The scar… I really hadn’t paid much attention to my incision. While in the hospital several nurses mentioned my “beautiful” scar and the bragging rights it gave me. I’m like “HUH?” Monday I actually looked at it. Whoa! It must be 18” top to bottom. Dang, no wonder my stomach is sore. I don’t know when, where or why I would brag but it is impressive.

Thanks to my family and friends for the continued messages, cards and good wishes. It helps a lot!

A few words from home...

2009-03-31T12:36:00.000-05:00

I can’t write for long but wanted to let you all know I am home. They released me Sunday evening. Sunday night was pretty tough but Monday was better. It is just going to take some time for me to heal, feel better and get back on track.

Ginger is still my angel. She takes care of me every day.

I am ready...

2009-03-22T17:23:00.003-05:00

Last post before surgery! I am so ready to get on with it! We’ll be at M.D. Anderson at 5:15 AM. We’ll update everyone as soon as we can. Today is “fasting day” for me. I can have clear, liquids only. So far so good! I wish someone would invent clear liquid cheeseburgers. I did ask about tequila since its clear…no go! No beer either! Dang!

Brittany left for Lubbock this morning. I will never get used to seeing my girls leave…ever! They are such a blessing in my life. I know they all want to be here during my treatment but it is better for all of us if we keep life as routine as possible. Besides, I couldn’t be in better hands…

Keep up the prayers. They do help…

Ginger & me at the SLTM Banquet

2009-03-20T09:01:00.002-05:00

I’m at M.D. Anderson this morning, getting my final “inspection” before surgery on Monday. I’m in between treatments, sitting in my own little quiet place. It’s a table in the back of the Cool Beans Café. This is where I go to wait between treatments. Other than mealtimes it is usually quiet with very few, if any people around.

They took more blood today. This is the first time it hurt. I think it may be a side affect of the chemo, considering how bad my skin reacted this week. I’m waiting to see my clinical trial doctor. Like everyone here she’s really kind and full of compassion.

Tuesday my friend Jerry (another lifelong friend from Indianapolis) asked me how high my “apprehension level” is. Truth is not very! I trust I am in good hands…period. God has blessed me in so many ways it’s fairly easy to trust…

Three days to go...

Look what happened to me…

2009-03-19T09:32:00.003-05:00

I've written about the toxic affects of the clinical trial drug. Here's a blow by blow account with pictures...

Monday, March 16

Waking up to burning, swollen face...

Calmly leaving for the hospital...

Leaving the hospital...Dang!

Thursday, March 19
Feeling and looking a little better...

Good news…

2009-03-17T13:31:00.003-05:00

After heavy doses of steroids (leave me alone Clements), pain killers, antibiotics and other stuff I’m happy to report the pain has let up, the swelling gone down and the rash appears to be healing. In fact, by the time I went to bed last night I felt pretty good…comparatively speaking. I still look like I got shot in the face with napalm coated shotgun pellets.

We all know someone who will say “Bob, some day you’ll look back on this and think it wasn’t that bad.” Uh, uh!!! THIS SUCKS! Will I be a stronger, more faithful man? A better husband, friend or father? Probably and for that I am thankful!

Update on my clinical trial drug…Ouch!

2009-03-16T17:28:00.000-05:00

Last Monday I had a “bit” of an annoying rash on my torso and neck. The doctor prescribed steroids and antibiotics which helped keep the rash at bay…until Saturday. By Saturday night my face looked like I had dipped it in a bucket of boiling water. Yesterday was awful; today not much better! Like having needles stuck in my head, face and back.

During today’s checkup at M.D. Anderson the doctor told me it is the worst skin reaction she has ever seen with this drug. Needless to say I stopped taking it. She prescribed high doses of steroids for the remainder of the week, believing this will ease my pain.

I guess this is what people do to try to heal. I have read such horror stories about chemo and I have maintained that if this is as bad as it gets I could handle it. Maybe not!

So, “C Day” is seven days away (“C” stands for Radical Cystectomy). I won’t say I am looking forward to the procedure or recovery but I am hopeful about life after recovery. Very hopeful…

My new friends Marcia & Ed...

2009-03-14T16:46:00.007-05:00

I met Ed through the Seabrook Lucky Trails Marathon. Ed, a runner living with cancer, was good enough to share his story to provide inspiration to others. I am one of the “others” and yes, Ed’s story is inspiring.

This morning Ginger and I had the pleasure of meeting Ed and his wife Marcia. Ed ran the Saturday Half Marathon and will run the full marathon tomorrow. Amazing!

While Ed and I agree that quality medical treatment is essential to our survival, we also know that faith, optimism, support and positive outlooks are critical as well. In fact, I just added Ed and Marcia to my long list of supporters. I know they are pulling for me and that alone gives me more inspiration.

Thank you Marcia & Ed!

Today Brittany arrived home for spring break after spending the night at with Alison and David. Brittany got to meet her new nephew Carter. We’re so happy to have her at home and even happier she isn’t venturing off to Mexico.

Life is good...

A wonderfully, normal day...

2009-03-13T04:59:00.007-05:00

I’ve been working in the DFW area this week. Last night Alison had me over for dinner. I had a home cooked meal with her, Trent and Carter. Actually Carter slept while we ate. Trent was so cute. He must have eaten a plate full of green beans (Note to Brittany…green beans, HAH!). Alison mentioned what a lovely diaper Trent would give her in the morning. Ah, the pleasures of being a grandparent…no more diapers!

What struck me this morning is how special it was to have dinner with my daughter and grandchildren; at her home sitting at her table! It isn’t something I get to do very often. It was so normal, simple and wonderful.

Later in the evening I talked with Adrianne and Brittany. Just small, everyday talk…the simple stuff family members share. The simple stuff I so miss sometimes, I guess it adds perspective to my life by reminding me of what beautiful, accomplished daughters I have. Two of them mothers raising children, making their way through life; the other starting out, finding her way; all of them doing it with grace and dignity…

I love you girls!

Happy Anniversary!

2009-03-12T16:28:00.004-05:00

Married 21 years to the girl of my dreams...

The love of my life...

Living in the Moment

2009-03-11T06:19:00.003-05:00

I have been reading a book titled What Helped Get Me Through (Cancer Survivors Share Wisdom and Hope). It has been a great comfort to me, sort of like group therapy. Ginger gave it to me soon after my diagnosis. I’ll treasure this book forever.

Dennis, a friend I grew up with in Indiana (we’re talking fifty years) is a cancer survivor. Dennis went through radiation, chemotherapy and multiple surgeries. In hindsight, I wish I had been more supportive. I guess I let a thousand miles and ignorance get in the way. Since my diagnosis Dennis has “been there” for me any time I need to talk. That’s what friends do and I am blessed to have so many of them just like Dennis. I’ve known Dennis since I was a child. Dennis, I love you like a brother. I don’t believe I’ve ever told you that. Thanks Dennis!

The first piece of advice he gave was to try to make the people around me as comfortable as possible. They’re not going to know exactly what to say, what to do or what to think. NOTE TO MY FAMILY & FRIENDS: You have all been wonderfully supportive, encouraging me every step of the way. After the initial shock wore off I began this blog. I didn’t realize it at the time but this is my therapy; my way of saying how I feel and what’s going on in my life. My attempt to make you AND ME comfortable as I (we) go through this!

A lesson from the book… I had been living my life like it was a prologue to something else, something more. Then, one day in the waiting room, it hit me: “This is my life, right here, right now. This is it.” I have always lived in the moment, probably to a fault. It is easier than worrying about the future or agonizing over the past. Besides, my personal angel Ginger does enough worrying for the both of us. This disease grounded me for a while. I reflected on everything past, present and future. Now I am trying to balance “live for the moment” with a realistic outlook. In other words, live each day.

Some of you folks have told me I’m brave. Thanks but the truth is I’m selfish, very selfish. I want to live, to be here with you because that’s my life, right here, right now!

Four of my many reasons for hanging around...

Trent

Braden
Teagan

Carter

Spots, spots everywhere!

2009-03-09T21:56:00.002-05:00

I had my weekly “Inquisition” (aka checkup) at M.D. Anderson today. Only 7 tubes of blood this week… Remember me mentioning possible side affects of my chemo. Dang! I made it three days before a nasty rash appeared. It’s like having sunburn without the fun of being in the sun. It hurts too. So my girls (P.A. & Nurse) prescribed ‘roids and antibiotics. Roger Clements called shortly afterwards but I hung up on him… Anyway, I hope the meds work fast. By the way, my joking about M.D. Anderson is just that…joking. I love those people!

To my friends that ran the TIR… Sorry I couldn’t be there to welcome you home. Ginger and I really wanted to go but the aforementioned rash had me feeling kind of puny. At my size that’s hard to do. Plus, being out in the sun would not have been good. Congratulations to all…that’s a tough run!

Ginger and I have talked about buying a motor home. Maybe that could be your support, sleep and drinking vehicle next year. I’ll be back with another update soon!

Surprise! Surprise!

2009-03-08T11:07:00.004-05:00

Late Friday afternoon I was working at home when Brittany called. I asked what she was up to; she asked what I was up to; typical daughter/dad stuff. A few minutes later she walks in the front door with Ginger. WOW! What a surprise. There’s nothing Ginger wouldn’t do to make me feel better!

Last time Brittany saw me was January 5, three days after my diagnosis. I had just come out of surgery and was lying in a hospital bed with tubes coming out of me. She had to return to school so it was a sad day in many ways. Needless to say I look much better now.

Even though she goes back to Lubbock tomorrow, she will be back home Friday for spring break. She’ll spend break here instead of going to Mexico. Apparently the border issues caused her trip to be canceled. THANK GOD!

I have three beautiful daughters and a precious wife. Throw in four grandbabies, two great sons-in-lay (emphasis on GREAT SONS), wonderful friends and the perfect companion Lucy (Dachshund) and I have all a man could want! I am so blessed.

It’s back to M.D. Anderson tomorrow for check-ups and tests. I received a message saying to be there by 7:30 or 8:00 AM. I then received an email saying to be there at 9:45 AM. HUH? This must be a part of the treatment. By never knowing exactly when or where you’re supposed to be you spend less time thinking about the illness.

Brittany holding BradenLucy doing what she does best...nothing!

Ginger at our home away from home,
the Hoaglin's river house in Indianapolis

Naked Mice?

2009-03-04T19:24:00.003-06:00

Thanks to my family and friends for all your support. It means the world to me.

I have a new bottle of drugs with a label that reads “Caution Chemotherapy, Dispose of Properly.” I thought I was supposed to take this crap not throw it away. Hmm...maybe I misremembered.

So, I spent most of Monday at M.D. Anderson. They took fourteen tubes of blood. Dang, that’s a lot. The good news is I qualified for the clinical trial (hence, the disposable drugs). This experimental drug is supposed to shrink tumors. It worked in naked mice (we’ll get to that shortly). It probably won’t impact my planned treatment but if it has any affect it could help future patients. That makes it worth it. I won’t get in to the list of possible side affects. Suffice to say I’m feeling okay so far.

Now, about these naked mice. My first thought was who shaves a mouse…other than Hung. Then I had this really weird Mickey and Minnie visual. Then Mighty Mouse flashed into my head and it went downhill from there. Well, I was talking with my friend Dave Conklin today and Dave actually knows where naked mice are bred. Some place in Ohio! Dave isn’t even sure why he knows this but HE DOES. He even mentioned the difficulty of putting little sweaters on them when they are cold.

Back to M.D. Anderson! I cannot tell you how much I appreciate the kind, respectful treatment I receive. You can feel the compassion they have for the patients. They take great steps to alleviate my concerns and fears by making sure I understand what I’m going through, what’s happening to me. However, I pray none of you ever have this experience.

Dave (on the right) is our Naked Mouse spokesperson...

Ginger & I Finishing Houston 2008
(one of my favorite pictures)

Good News and...

2009-02-27T17:09:00.005-06:00

Let’s get right to it! I have good news and…well…news.

Good news… Dr. Kamat used words like cure, cured, recover. News… He also used words like kill, dead and done (as in dead). For this post we’ll focus on the first group of words. The diagnosis in “Bob” words is T1 tumor that has begun to invade the bladder wall. The “Doctor” words are TUMOR, RIGHT LATERAL WALL: PAPILLARY UROTHELIAL CARCINOMA, HIGH GRADE (GRADE 3), with FOCAL INVASION INTO SUPERFICIAL LAMINA PROPRIA.

Hmm, I thought a FOCAL INVASION was when Hung and Jim looked through the window to see Cheryl having her morning coffee.

So… On Monday, March 23 Dr. Kamat will surgically remove my bladder, lymph nodes, prostate and any other parts that appear to be at risk. This is the safest option and has an 80% success rate of eradicating the cancer completely. He will build a new bladder that, after rehab, will function pretty much like the original. In fact, if all goes well “everything” will function like original equipment.

Hospital stay will be 7-10 days with 6-8 weeks recovery. He said I could be running, or at least walking within 6-7 weeks after surgery. YES!!! He said that apart from cancer in my bladder my body is very healthy, strong and, get this, very young. Exercise works…

More good news! The M.D. Anderson Clinical Research group invited me to take part in a trial. I’m taking an experimental chemo drug that has shrunk tumors in rats. IT WORKED IN RATS! Why not me? Hmm, I wonder how those rats are doing… Will it alleviate my need for surgery? Probably not but miracles do happen! If it shrinks my tumor at all it is a success and might help the next person that gets this disease.

Are there risks? Yes. Will the cancer come back? Don’t know but I wasn’t expecting it the first time so I’m not going to worry about a second time. And remember, there is only one other alternative (see second group of words in second paragraph).

Well, there you have it. Bob’s Excellent Adventure continues.

All kidding aside, I’m anxiously awaiting that first day when I wake up and the pain is gone. I know its coming. In the meantime I’ll keep my family and friends in my thoughts and prayers. You folks have kept me going…

2009-02-26T07:13:00.004-06:00

I know I still owe everyone an update on my visit to M.D. Anderson. I’ll write it tomorrow.

I had dinner with Alison, David, Trent and Carter last night. Carter has really grown…at least he looks bigger. Alison looks considerably smaller and David looks, well, like David. Trent decided to play in his car rather than eat with the “old” people.

As I was leaving there was a frog on the front porch. Trent doesn’t like frogs…yet.

Carter taking it easy after meal time...

Trent driving his car...

A Message For Michelle...

2009-02-24T10:46:00.002-06:00

I sent this message to Michelle this morning and then realized it would be a good “post” for my blog.

Hey Girl!

We're still praying for Kathy. Chemo and radiation are tough. We're pulling for her. Where is she being treated? We'd love to send her a note of encouragement.

We're sitting in the Waterfall Cafe at MD Anderson. Just ate eggs, biscuits, gravy and hash browns. Life is good! I've already been to the Vampire Department (blood tests). Next appointment is at 11:30 with the Texas Chainsaw Group (my surgical treatment team). They will give us the final diagnosis and treatment plan. This afternoon we meet with the Lethal Injection Department (Anesthesia Assessment). Then we go home...

Cancer is not funny but by laughing at it I don't allow it to change who I am...Bob.

Thanks for thinking of me. It really does help.

Bob

Friends

2009-02-22T11:25:00.006-06:00

I have found that friends appear, unasked and undemanding, just when they are needed most – the love of friends is incredibly reaffirming.

I received this from my sister Marcy this morning…

2009-02-21T12:01:00.002-06:00

Boy do I miss running...

2009-02-20T15:40:00.007-06:00

I felt better this week than I have for months. Spent three days on the road working! I get tired easily which frustrates me. A few months ago I could run a marathon. Now I struggle to get through a day. Oh well, I guess that comes with the disease. It's like being in training for a race. A race I intend to win!

My next M.D. Anderson expedition is Tuesday, February 24. That’s when we get the final prognosis and treatment plan. I know they want to do more surgery and if that has to be then we’ll do it. However, I am not giving up organs without a fight! I want to be absolutely convinced that is my only alternative. I know God has been working in me, healing me. If it’s His will that surgeons do the rest, okay. But I need to be convinced.

Speaking of running, I found a few of my favorite pictures. I so miss being healthy and able to run…BUT I WILL RUN AGAIN!

Marine Corps Marathon
October 2006
"We Did It"
(The smiles are fake...we can barely stand)

San Antonio Marathon
November 2006
"Bob Cruising"

Dallas White Rock Marathon
December 2006
"It Was Cold"

Houston Marathon
January 2007
Ginger & Me

Austin Marathon February 2007
Brenda, Vicki & Me
(No Thighs Showing)

Seabrook Lucky Trails Marathon
March 2007
Brenda & Me

"I'll Be Back"

Pray for Kathy...

2009-02-17T17:38:00.005-06:00

It seems everywhere I turn there are reminders of people living with cancer. Just this morning our friend Michelle asked us to pray for her best friend Kathy who is only 35. Kathy has cervical cancer and was in surgery to remove the tumors. It was a six hour procedure. I hope she recovers quickly and heals completely.

From recent, personal experience I can tell you how meaningful it is to a cancer patient to know people are praying for you. My daughter Adrianne told me I am on prayer lists at churchs full of people I don’t even know. She told them about my illness and that was that…pray for Bob.

I have always known I have family and friends that care about me; love me. I just never realized the amount of strength I could draw from their support when I needed it most. A phone call, email, get well card…it doesn’t take much to lift my spirits.

I have my own prayer list that is growing. Kathy is the newest member. I don’t know her but I will keep her in my thoughts and prayers.

More Carter Photos

2009-02-13T18:36:00.006-06:00

Grandma Ginger

Great Grandma Fletta

Presenting Our Newest Grandson Carter David Jones

2009-02-12T15:42:00.009-06:00

Born February 12, 2009
9 lbs 7 oz
21"

Cruising and In Love!

2009-02-10T09:46:00.008-06:00

A couple of years ago Ginger and I went on a seven day cruise with our friends Janice and Jeff. Although we were apprehensive about being on the water for a week it turned out to be one of the best vacations we ever had.We visited Key West, Grand Cayman and Cozumel. And…drum roll please…we did not gain weight! We were in training for the Marine Corps Marathon so we went to the gym every day to use the treadmills. We spent hours in the gym trying to stay in shape for the race which was only a few weeks away. It worked!

We have a lot of good memories from the trip, one of the funniest being our thousand dollar bar bill at week’s end (Ginger drank a lot). Another fun memory is the Party Boat in Cozumel. It was a four or five hour trip on a ferry boat with unlimited cocktails…really! It was pretty crazy. Ask Ginger about Ms. Texas (and the twins)...

Below are a couple of pictures. Do we look happy or what?

Just Laying Around...

"The Party Boat Beach"

The Girls

2009-02-08T15:29:00.000-06:00

Athletes?

What are they looking for?

My Girls

What really happened on the Hudson River...

2009-02-08T13:23:00.001-06:00

Welcome to M.D. Anderson

2009-02-06T16:52:00.001-06:00

We spent three days in a row at M.D. Anderson this week, culminating with surgery number two yesterday. Ginger and I arrived at M.D. Anderson at 5:30 AM. We were on our way home at 12:00 PM. I don’t remember much about the 6 or so hours I was there. Apparently I talked with my doctor but I don’t even remember seeing him. I did have the “pleasure” of removing my own catheter when I got home. I’ll spare you the details… My spirits are pretty high today but I feel like I have mild whiplash, kind of like the second day after a marathon. Stiff neck and jaw, sore arms and legs plus a sore throat… I guess this is post-op trauma from the breathing tube and the way I was positioned on the operating table.

The doctor did take a biopsy and we should have results in a week or two. He also removed remains of the original tumor (no new tumors, Thank God). Ginger specifically asked him if I would be able to run again. He said yes. The simple fact he’s referring to me “having a future” is reassuring. I still have a ways to go but I do have a future. I truly believe this is the result of all your prayers.

To the Tuesday Night Drunken Running Cult/Losers, your picture and “comments about Bob” meant the world to me. I understand this was the idea of a blue eyed angel. Wait until I see her!
Thanks for keeping us in your prayers.